Monday, September 21, 2009

Mito-awareness Week



This post is for another Ella. To read her story, click here.

Many states have 'official' Mitochondrial Disease Awareness weeks - declared as the 3rd week in September to raise awareness for Mitochondrial Diseases.

This event is to spread awareness on Mitochondrial Disease wherever YOU are located. :]


• Every 15 minutes a child is born that will develop mitochondrial disease by age 10.

• It is estimated that of the 4 million children born each year in the United States, up to 4000 develop mitochondrial diseases.

• At least 1 in 200 individuals in the general public have a mitochondrial DNA mutation that may lead to disease.

• There are over 40 identified types of Mitochondrial Diseases and believed to be over 100 variants of mitochondrial diseases, .

• In the United States, more than 50 million adults suffer from diseases in which mitochondrial dysfunction is involved. Mitochondrial dysfunction is found in diseases as diverse as cancer, infertility, diabetes, heart diseases, blindness deafness, kidney disease, liver disease, stroke, migraine, and the toxicity of HIV and other drugs. Mitochondrial dysfunction is also involved in aging and neurodegenerative diseases such as Parkinson and Alzheimer dementia.

• The World Health Organization (WHO) calculates that neurodegenerative diseases, also associated with mitochondrial dysfunction, will become the world's second leading cause of death by the year 2040.

9 comments:

  1. Bree, I have never heard of Mitochrondial Disease. Thank you for this post. Eduation is always a good thing.

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  2. I hadn't either until I read Ella's story.

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  3. Thank you for this post because I was also unaware of this disease and really surprised on how it affects the body~ scary!

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  4. thanks Bree.. My husbands cousin Amy lost 2 babies to this a few years ago and all I knew is that it was a rare genetic disease and nothing more.. it turns out the exact form that Ella had was rare, but the disease is a whole is becoming as common as childhood cancers.. I had no clue... I absolutely had no idea that it would devastate our lives also..

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  5. You are such an amazing person Bree to spread the word and for being such a great friend.

    I had honestly never heard of this until now. Thank you for re-posting this and sharing the word.

    *hugs*

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  6. Thank you for bringing this awareness to our attention. My friend's daughter had Alpers and sweet Harley passed away in August.

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  7. Bree-thank you so much for sharing this. I had never even heard of it. You are so brave.

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  8. I had no idea- thank you so much for sharing this!!!
    Hugs-

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  9. Bree - I was shopping around online and saw these adorable butterfly magnets and it instantly made me think of you and your precious Ella so I had to share ...
    http://tinyurl.com/ycuzwob

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